Greetings from a very warn out and tired Dad.

Elijah has had a runny nose for the last 2 weeks now - you will have seen some of the info in my last post well - it hasn't improved any in fact on the Tuesday and Wednesday - he along with his sister had diahorrea - and Mum had vomitting - at least the temp was down for a bit Although on Wednesday night Elijah started having a high temperature again - 37/38/39 on Thursday it was up and down and he started to have drop seizures - yeah - I took him to the Doctor on Friday morning and she said just viral and not alot could be done apart from ride it out. Well his bowels have settled down but the runny nose and the temperatures didn't over the weekend. The Doctor said on friday that we could probably increase the clonanzepam to two drops twice a day in the mean time to combat the drops (we have since heard from the dr at the hospital that they try not to change the medication during this sort of time) - ah well what do doctors know - we only entrust them with our life and health and those of out loved ones - said without trying to sound cynical well too cynical.

The weekend did not see anymore drop seizures and so we did not do anything with Elijah's medication, but regular temparatures reducing routines - know them backwards now. Now let me think what day is it - well it's Thursday now in New Zealand. Monday and Tues Elijah began to have some little drop seizures nothing too big but little clusters - Tuesday night Julie rang me at work as Elijah was having some more intense seizures and abscence - with bubbles in the mouth - and becoming semi consicous. Kept and eye on things

More to follow

Morning One and all - this last 5 days has been crazy in our house - Elijah was running a high temp from last Thursday - 39.5 F- meant that he was a bit shakey he has just had ablocked up nose - a bit runny - didn't go swimming on Saturday morning - his tempo was up and down. the temp was up to about 40.5 - which is hot = lots of baths to cool him down.

Saturday was also a really hot day as well that doesn't help much. About 4:30pm he became clingy - I went into the office to get something - he followed me and then without warning a big vomit - took his temp 40 - gave him some Ibroprofed - he wan't interested in liquid ad so I gave him a fruit salad - smoothy I had frozen - drank that - put hi in the bath and he was having some big drops and eyes rolling back in his head - a couple of times I thought he was going to lapse into inconsciousness. slowly his temp came down and stayed reasonably settle the rest of the day.

All I could thik of was - here we go again - in Jan he had vomitting and seizures on a hot day and ended up in the hospital - this was before we knew about Angelman Syndrome. I am pretty sure that the anticonvulsants that he is taking everyday - have gone a long way to help keeping any seizures in check that result from high temp.

Sunday was okish temp was a bit up but settled by the end of the day - Monday ok - Tuesday - along with his sister - elijah has a dose of diahorrea - yukky yukky yukky

Thankfully that only lasted yesterday and his body seems to have settled down. J his Mum was not well either and so that meant that I was home and got to spend a whole bunch of time with Elijah and also this morning - J has an unsettled tummy and so we had some fun times interacting this morning.

Whilst his temp was down Saturday MOrning we visited with a the family of Tobias - who is 3 and has Angelman Syndrome - Tobias and his family have recently moved from Germany to live in Christchurch. Tobias has a sister who is close in age to Francesca and they had a ball.

Well folks until next time - peace be with you and yours.
Darren
Father to Elijah - Angelman Syndrome Del + New Zealand