Elijah - an Angel Story

This weekend was a holiday weekend here in New Zealand, Queens Birthday weekend, which was a good opportunity to catch up with a few people. We caught up with a couple of other Families with children with Angelman Syndrome. One of the families have a little boy who is a little bit olde r than Elijah and his dad is helping me with the website design, we hadn't caught up with them for a while so it was good to visit and compare notes. Today we visited with another family who have adaughter with Angelman Syndrome. Her mum has helped us by making some night clothes for Elijah. As you know we have had alot of challenges with sleeping and Elijah getting into his nappies and things. She was able to make us an inside suit and an outside bag that we can't get into and so we are hoping for a good night's sleep for both Elijah and ourselves.

Until next time