Still happy to report no more temperature in almost a week now and so the whole family are feeling a bit happier, although Elijah has been a bit fussy with food this week - he still has alittle bit of a runny nose.
This is a picture of Elijah and his sister Francesca a couple of weeks that I picked up this week it's a really nice photo - you can't see my hand up his back supporting him.
Well tonight at least 4 families of children in Christchurch with Angelman Syndrom - well parents will be meeting for a social and just spend some time together and share.
We now know of 9 families in Christchurch in Christchurch with Children with Angelman Syndrome. There seem to be a bunch of children all around the same age. Saturday week ago - to be updated.