I am happy to report that the weekend was reasonably unevenful - in terms of seizure activity and so we have stayed with a low dosage of clanonzepam this is having it's desired effect I am happy to report this and have been hoping and praying that it would be only shortlived. The sleeping still continues to be cahllengin last night he was awake from 10:30 - 3:30am. I learned tonight of some slow release melatonin and so will have to follow this up. I have just learned of another family in Christchurch who has a boy who has angleman syndrome - this bring our merry band of angels to 6 confirmed. 3 families met late last month and had some time to share and our kids to meet - we will look to meet again in November.
Until next time peace be to you and yours - health to your enemies enemies.