I am happy to report that the weekend was reasonably unevenful - in terms of seizure activity and so we have stayed with a low dosage of clanonzepam this is having it's desired effect I am happy to report this and have been hoping and praying that it would be only shortlived. The sleeping still continues to be cahllengin last night he was awake from 10:30 - 3:30am. I learned tonight of some slow release melatonin and so will have to follow this up. I have just learned of another family in Christchurch who has a boy who has angleman syndrome - this bring our merry band of angels to 6 confirmed. 3 families met late last month and had some time to share and our kids to meet - we will look to meet again in November.
Until next time peace be to you and yours - health to your enemies enemies.
D
About Me
- Elijah
- Christchurch, New Zealand
- Elijah had Angelman Syndrome. He lived in Christchurch New Zealand with his Mum, Dad and his sister Francesca. Elijah was returned to the Lord on 13 August 2007. This is his journey and our journey through the eyes of his Father - Darren
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