Morning One and all - this last 5 days has been crazy in our house - Elijah was running a high temp from last Thursday - 39.5 F- meant that he was a bit shakey he has just had ablocked up nose - a bit runny - didn't go swimming on Saturday morning - his tempo was up and down. the temp was up to about 40.5 - which is hot = lots of baths to cool him down.
Saturday was also a really hot day as well that doesn't help much. About 4:30pm he became clingy - I went into the office to get something - he followed me and then without warning a big vomit - took his temp 40 - gave him some Ibroprofed - he wan't interested in liquid ad so I gave him a fruit salad - smoothy I had frozen - drank that - put hi in the bath and he was having some big drops and eyes rolling back in his head - a couple of times I thought he was going to lapse into inconsciousness. slowly his temp came down and stayed reasonably settle the rest of the day.
All I could thik of was - here we go again - in Jan he had vomitting and seizures on a hot day and ended up in the hospital - this was before we knew about Angelman Syndrome. I am pretty sure that the anticonvulsants that he is taking everyday - have gone a long way to help keeping any seizures in check that result from high temp.
Sunday was okish temp was a bit up but settled by the end of the day - Monday ok - Tuesday - along with his sister - elijah has a dose of diahorrea - yukky yukky yukky
Thankfully that only lasted yesterday and his body seems to have settled down. J his Mum was not well either and so that meant that I was home and got to spend a whole bunch of time with Elijah and also this morning - J has an unsettled tummy and so we had some fun times interacting this morning.
Whilst his temp was down Saturday MOrning we visited with a the family of Tobias - who is 3 and has Angelman Syndrome - Tobias and his family have recently moved from Germany to live in Christchurch. Tobias has a sister who is close in age to Francesca and they had a ball.
Well folks until next time - peace be with you and yours.
Darren
Father to Elijah - Angelman Syndrome Del + New Zealand
About Me
- Elijah
- Christchurch, New Zealand
- Elijah had Angelman Syndrome. He lived in Christchurch New Zealand with his Mum, Dad and his sister Francesca. Elijah was returned to the Lord on 13 August 2007. This is his journey and our journey through the eyes of his Father - Darren
1 comment:
I am so glad to find your blog, my Joshua also has Angelman Syndrome. I saw your e-mail on the listserve and followed your blog link. Elijah is precious! I am glad that he is on the mend from being sick, sick Angels are no fun.
Blessings to you all!
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