Elijah - an Angel Story

Ah the joys of negotiating with doctors is an interesting experience.

About 5 weeks ago Elijah experienced the very dramatic onset of seizures - both abscence seizures and drop seizures. This culminated in unconsciousness and being rushed to the hospital by ambulance.

I guess as parent you are always aware of the high occurence of seizures in Angels, but nothing really emotionally prepares you for the onset of them. Many people I have spoken to have told me that their first experience has been a dramatic one.

The long and short is that Elijah takes both EPILIM (SODIUM VALPROATE) and also (ritrovil) Clonazepam - both anti convulsants. We were told that the the Epilim would take some time to take effect and so we were also prescribed the Clonazepam. ( Elijah was having about 150-200 seizures a day).

He has now been on both these medications for about 5 weeks and although he is 1 and a half we have noticed him become more fussy and irritable, moody and grumpy and even a little aggresive. I found that this can be one of the side effects from the Clonazepam - our family Dr was not so quick to agreed with us - resulting in some tension - I pushed the matter and the upshot is that we are reducing the clonazepam - and then will stop it by this time next week and we will see if this has any affect - I hope so. I also found that bloody noses and skin rashes can occur with both or more closely associate with Epilim and so will be keeping and eye on that.

Apart from all this drama - Elijah is enjoying life as he always does - until next time