I spoke with Elijah's Neuro yesterday and he agreed to in light of abscence of "viral infection" that we could reduce the Clobazam medication that we were giving him for the seizures cause by the infection. So we will reduce by one dose each day and then after one week we can give it away completely. At least this will be one less medication to have to give him.
I also asked him about testing the Ammonia level in Elijah's blood, which I had asked him about before - he seemed a little hesitant but agree to have his blood tested when we were next in - which turns out is not until July - we had read that raised ammonia levels can cause issues like seizure activities.
more to follow
About Me
- Elijah
- Christchurch, New Zealand
- Elijah had Angelman Syndrome. He lived in Christchurch New Zealand with his Mum, Dad and his sister Francesca. Elijah was returned to the Lord on 13 August 2007. This is his journey and our journey through the eyes of his Father - Darren
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