2nd of September 2006
The next challenging thing along side of the escapism - is the sleeplessness - which I think probably encourages the houdinism. Both Julie and I although more Julie are getting pretty weary - Elijah is likely to wake at least once a night if not more and well everynight you can't be sure what you will find when open the door - although a smile and a laugh are almost predictable.
The challenge has now been getting him off to sleep as well and so we are in the process of two things - 1) finding someone who will either take the zips of the front of his pyjamas and put them in the back and 2) find a sympathetic Dr who will prescribe us some melatonin to give both Elijah and ourself some peace at night. Our current Dr is not so keen on the melatonin - she doesn't believe in it - well we do from all our reading and are keen to see if this will be of benefit.
03 September 2006
I am happy to report that after some pushing and shoving and a number calls to the hospital, I feel like we have made some progress. I have made contact with a Epilepsy Nurse at the hpspital who will talk with the Specialist tomorrow and is going to recommend we trial some Maletonin - and see what the specialist has to say. She also told us that she will now be our contact person if we want to talk to someone about Elijah's medication particularly in relationship to his seizures but not exclusively. This is a key contact and now we don't have to go via our GP (family doctor) who has not been particularly helpful these last couple of weeks. You know I hatre to say it but the squeaky wheel gets the oil and persistance pays of a bit like the parable of the persistant widow in from the Bible - Luke 18
"Then Jesus told his disciples a parable to show them that they should always pray and not give up. 2He said: "In a certain town there was a judge who neither feared God nor cared about men. 3And there was a widow in that town who kept coming to him with the plea, 'Grant me justice against my adversary.'
4"For some time he refused. But finally he said to himself, 'Even though I don't fear God or care about men, 5yet because this widow keeps bothering me, I will see that she gets justice, so that she won't eventually wear me out with her coming!' "
We give thanks to the Lord that we might now be able to make some progress in this matter.
Until next time